Caregiving

A Halloween Less Haunting, 21 Years After ADEM

Our ghost, made out of an old, white sheet, hangs from the front trellis. Our wicked witch peers out the living room window. Our creepy, homemade scarecrow guards the path leading to the candy, although in the midst of the pandemic, we don’t expect many trick-or-treaters today. Even our town’s annual Halloween parade–typically one of […]

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Celebrating Mom’s 90th Birthday Through a Window

(Originally published May 16, 2020) My mother, Dorothy, always made birthdays special for me and my siblings. When we were young, she organized parties where we played Pin the Tail on the Donkey, and opened lots of presents. As we grew older, she invited family to our house and cooked a delicious meal of our

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Use Tech During Pandemic to Connect with Elderly

(Originally published March 19, 2020) My mother, Dorothy, lives in an assisted living facility not far from my home. She’s struggling with dementia that worsens month by month, and I visit her often. We also have a beloved aide, Barbara, who takes her on outings several times a week. When the facility announced a ban

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Dinner with the Elephant

(This article, originally published by BrainLine in January 2016, provides some background into my family’s experience with ADEM – Acute Disseminated Encephalomyelitis. It was written more than 16 years after my husband’s illness began. Sandra Levine also presents speaking programs on ADEM recovery and caregiving.) Early one morning last month, with sleepy eyes half open,

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